CISCRP "Aware for All" event at Trinity Translational Medicine Institute

Posted by Ellyn Getz on Nov 21, 2018 5:02:41 PM

 

Members of the public are invited to attend a free health event that educates about clinical research and recent medical breakthroughs. The AWARE for All event, which is being organised by the Centre for Information and Study on Clinical Research Participation (CISCRP), will take place at the Trinity Translational Medicine Institute at St James’s Hospital on Wednesday, December 5, from 5pm to 8pm.

 

Despite the level of health research activity in Europe, and although clinical trials may be the only option remaining for patients facing a serious illness or a disease for which there are no good treatments, a recent global study entitled “Public and Patient: Perceptions & Insights” found that the European public shows the lowest general knowledge about the clinical research process and the lowest willingness to participate in clinical trials.  Moreover, the European community considers clinical research to be riskier than does the public in many other global regions. In fact, a lower proportion of the public in Europe is willing to participate in clinical research today (58%) than did so in 2007 (71%) and European study volunteers are among the least likely to participate in another study in the future.*

 

Meanwhile, the volume of clinical research activity is actively growing here in Ireland. According to statistics from Health Research Board Clinical Research Co-ordination Ireland, there has been a steady increase in the number of open trial sites across its network of research centres in Ireland, up from 143 in 2014 to 237 in 2017, with 18 hospitals and 333 investigators involved in these clinical trials in Ireland in 2017. Figures from the Health Products Regulatory Authority show that last year 96 new clinical trials of human medicine, and 9 new clinical investigations for medical devices, were approved here.

 

Enter The Centre for Information & Study on Clinical Research Participation (CISCRP), a globally focused non-profit that aims to increase clinical research awareness and overall health literacy, particularly among those from disadvantaged backgrounds. The team have been actively working with research and charity groups throughout the country these past few months to organise AWARE for All, an inaugural Irish-focused ‘Clinical Research Education’ event. Participating organisations include: Health Research Board – Clinical Research Coordination Ireland (HRB – CRCI), the Medical Research Charities Group (MRCG), Longboat, The Wheel, Cystic Fibrosis Ireland, Sickle Cell Society Ireland, Alpha-1 Foundation Ireland, Irish Health Research Forum, Cancer Trials Ireland, Trinity College, Boots Pharmacy, IPPOSI, Merck, ICON, and the Medical Research Network in the UK. A full listing of supporters can be viewed here: https://aware-dublin-18.eventbrite.com/?aff=Lbblog

 

The programme will include:

  • free health screenings
  • free food
  • informational exhibits
  • discussions featuring doctors undertaking clinical trials and patients taking part.
People will learn what clinical trials are, how they work, and how they inform public health. Attendees will also be advised about the safety, benefits, and risks of participation.

 

A closer look at the attitudes and perceptions strongly indicate that much more focus and attention is urgently required to address underlying concerns and implement target outreach, education, and new patient initiatives; but, this programme is a strong start to bridge the gap in communication among all stakeholders.

Reserve your free spot today: www.awareforall.org or contact ellyngetz@ciscrp.org if your team is interested in exhibiting at the event. For more information on the work of the Centre for Information and Study on Clinical Research Participation, visit www.CISCRP.org.

 

*Click here to view the full “Education and Satisfaction Disparities Evident Among European Patients, Public” article and study analysis, which was published in Applied Clinical Trials.

 

Author

Ellyn Getz

Senior Manager of Development & Community Engagement

The Centre for Information & Study on Clinical Research Participation (CISCRP)

 

Topics: clinical trial training, patient engagement, Clinical Trial Results, Patient Centricity, Informed Consent